Wednesday, June 17, 2015
Tuesday, June 16, 2015
COPD rant and Class Reunion questions
I have COPD.. severe COPD.. 25% lung function.. and that was several years ago.. since it is a progressive disease my guess is now around 20% or less. Think about that.. It is extremely hard for me to do the simplest of tasks. Taking a bath is exhausting. Walking across the room is exhausting.. Take a second and imagine this .. yeah awful and don't I know it.
I work really hard at being upbeat and have a good attitude. I figure what the heck this is better than the alternative right? I don't complain and only those that know me understand how hard my life is.. and still I have no complaints.
I am for all practical purposes a shut in, I have not been out of this house since last August.. for real. And I can honestly say I am ok with it. I have wonderful family and friends who do so much for me.. from getting groceries to taking out my trash.. they are there for me.. I had to learn to ask for help.. (which I hate doing)
But please don't tell me I can do something that I can't .. it just is like rubbing salt on a wound.. it forces me to come face to face with the facts of my life. And it hurts. I cry and then I get over it till the next time. please stop..
Then in other unrelated news there is that damn Class Reunion coming up. They send letters, they call, they send another letter, they call again. The ones that I have never had a conversation with, who were the popular kids, yep them. (I was the mouse in the corner in school) I find this odd. Before graduation no one knew I existed and since no one knew, sooooooo Why do you suppose they are so keen on getting me to attend?
I work really hard at being upbeat and have a good attitude. I figure what the heck this is better than the alternative right? I don't complain and only those that know me understand how hard my life is.. and still I have no complaints.
I am for all practical purposes a shut in, I have not been out of this house since last August.. for real. And I can honestly say I am ok with it. I have wonderful family and friends who do so much for me.. from getting groceries to taking out my trash.. they are there for me.. I had to learn to ask for help.. (which I hate doing)
But please don't tell me I can do something that I can't .. it just is like rubbing salt on a wound.. it forces me to come face to face with the facts of my life. And it hurts. I cry and then I get over it till the next time. please stop..
Then in other unrelated news there is that damn Class Reunion coming up. They send letters, they call, they send another letter, they call again. The ones that I have never had a conversation with, who were the popular kids, yep them. (I was the mouse in the corner in school) I find this odd. Before graduation no one knew I existed and since no one knew, sooooooo Why do you suppose they are so keen on getting me to attend?
Monday, June 1, 2015
My really really bad day
So I wake up at around 3 am today .. wow can't breathe... wonder why.. then it dawns on my .. machine is not working NO O2 coming out.. grab the tank I keep for emergencies .. turn it on and catch my breath.. finally start down stairs.. holding heavy tank and the 50 ft cord from the machine... down about 4 steps .. stooopid safety on my stair lift stops me. cuss.. get up reset safety.. continue down.. all this time the machine is alarming .. loudly.. very loudly.. my ears are still ringing. turn it off.. wait.. turn it on .. success it works for about a quick minute and the boom off and alarming again.. checked cord for kinks. there are none... reset and try again.. same result. .. still not satisfied I try one more time.. same result .( You know what they call a person who does the same thing over and over and expects a different result?}. runs for a few and then alarms. around 3:30 AfreckinM I call emergency number for Lxxcxxx.. after pushing 1 for English.. yes .. 1 for English.. and a couple other number to get to a live person, a very nice lady in Florida takes my info and puts me on hold.
Soon C**y comes on the phone.. Says do you have plenty of canisters? I answer that I do he whines well it will be around 7 before I can get there as I would have to go to the shop etc.. blah blah blah.. Use your canisters and I will see you first thing in the morning.. I ask what time is that .. he replies 9 or 10 am.. I must have gotten on the $hit list some how.. I am stressed to almost my limit and that of course makes breathing harder.. but not an emergency ....this hard to believe.... I am not happy to say the least.
It is now almost 7 am.. and I am making a list of things to do today..
1. Find new oxygen supplier
2. Find out what constitutes an emergency
3. Nap
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